Access to and use of health data in the health care and consumer health sectors for research purposes. An ethical, legal and social analysis

Relevant for Research Area

A - Foundations

B - Core Technologies

C - Applications


Martina Baumann (KIT-ITAS)

PD Dr. Joachim Boldt

Christopher Coenen (KIT-ITAS)

Dr. Philipp Kellmeyer

Prof. Dr. Oliver Müller

Prof. Dr. Silja Vöneky

The use of accumulated health-related data for health research is one of the most promising areas of health innovation. The contexts of data collection and use can vary widely. They include highly regulated and institutionalised areas such as the use of clinical data generated by the treatment of patients. On the other hand, there is the use of data generated by healthy individuals through the use of mobile devices and wearables, shared on social cloud services and sometimes evaluated by the consumers themselves.

The overarching goal of DaDuHealth is to develop recommendations for the regulation of the access to and the use of health-related data. To do so,  DaDuHealth analyses legal and ethical-conceptual framework conditions of data use. It additionally examines institutional guidelines, social trends, usage behaviour and stakeholder interests in the medical-institutional and consumer health technology sector. With the help of interactive methods, the public is involved in the discussion. Accordingly, the project contributes to ethical, legal and social questions of digitization, Big Data and artificial intelligence in health research and care.

More info available at the official project website at